The pulmonologist I met with today was really nice and very thorough. He had my recent scans, looked up my old scans and x-rays from July 07 when I was a raging cancer incubator, and had an overview of my story before he ever came in the room. And he had a pleasant bedside manner to boot. He listened to my complaints and asked questions and did an exam on me that seemed pretty thorough.
We learned a few things in the appointment. One is that there is residual damage in my right lung. Nothing catastrophic pictorially. Some narrowed airways and scarring, but nothing crazy. The other thing is that my heart isn't beating normally. It skips and dances a little bit. He said it was musical. I am not terribly surprised by that since I have lots of palpitations that go along with my shortness of breath. This could be a combination lung/heart problem. We have to do some test to figure that out.
He ordered an echo cardiogram which will check for heart damage and look at my valves and such. Also a pulmonary function test before and after albuterol treatment to check my lung function. The hospital will call me tomorrow probably to schedule these tests and I go back to this doc in two weeks to follow up and get a treatment plan.
So here we go.
At least I am helping to prop up the health care economy. I am expecting a $600 bill for my Feb PET scan and though I am not sure, an echo cardiogram doesn't sound cheap. Does it? Oh well. It must be done. I am grateful for the insurance.
Mom went to the appointment with me and afterwards we took Jackson to the park. It was such a beautiful day and he had a really good time throwing rocks in the river.
He has been spending a ton of time in my bed at night. He comes in at some point and doesn't want to leave. Then I get him to go back to his bed only to have him come back half and hour later. It makes it difficult to sleep, especially when I have such a hard time sleeping anyway. My breathing is worse when I am laying down. So last night at bedtime we had a discussion about how I need him to stay in his bed till morning. He said, "But mommy, your bed is cozy." Which made me laugh and want to invite him in my cozy bed whenever he want to come. But we need our sleep, all of us. I will be content if I can get him down to an occasional visit and get him to go back to his bed when I ask him to. I don't want him to think he can't come in if he has a bad dream or needs me for some reason.
Last night when he went to bed he said, "Mommy, I promise to stay in my bed all night." And he did. He didn't come in at all. He knows it is time to get up when his daddy gets up and gets in the shower to get ready for work. But David didn't go to work today, he worked from home. So around 7:00 this morning I heard the door of my bedroom open and then close after a few seconds. Jackson had come to see if his daddy was up and when he saw that he wasn't, he went back to his bed. He was checking to see if he could get up yet. I got up and asked him if he wanted to come get in bed with me since it was morning now. So he did get to cuddle in my bed for a little while but he didn't spend half the night there keeping us awake. He says he will do the same tonight. I hope it is this easy. Just a discussion and his behavior changes. Nice. Knock on wood.